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DWARFISMGene Discovered For Form of Dwarfism News from The University of Texas-Houston Health Science Center identifying a gene that causes pseudoachondroplasia The Genetics of Dwarfism Article from the Human Genome Project discussing the genetics of dwarfism Internet Resources on Dwarfism Collection of clinical resources on Dwarfism Kathryn and Alan C. Greenberg Center for Skeletal Dysphasia's The Kathryn and Alan C. Greenberg Center for Skeletal Dysphasia's is dedicated to the medical care and education of persons with skeletal dysphasia's, and to the clinical and laboratory investigation into these conditions. Medical Information on Dwarfism Directory of medical resources on dwarfism. National Library of Medicine-Cockayne Syndrome Text and images on cockayne syndrome Little People of America Learn more about this national organization for dwarfs and their families and friends. Where Do I Begin? Finding out that your child has a form of dwarfism can be overwhelming -- especially when it comes to learning more about her or his condition. Start here with brief definitions of the most common types of dwarfism, and a few rare conditions as well. Each definition includes links for you to find more information on your own.Frequently Asked Questions Medical, genetic, and social information, including the Americans with Disabilities Act; how to have your car's airbag disconnected (and whether you should); and the pros and cons of limb-lengthening surgery.LPA Medical Advisory Board Physicians and other medical specialists from around the country who have made their expertise available to the dwarfism community.LPA Online Library Check out a variety of magazine stories, medical-journal articles, and other publications.Asociación Nacional Para Problemos de Crecimeinto The Spanish Association for Little People.Asociación ADAC (Asociación para las Deficiencias que afectan al Crecimientoy An excellent Spanish-language site that's full of information.Association Belge des Personnes de Petite Taille The Belgian Association of Little People.Belangenvereniging Van Kleine Mensen (BVKM) The Dutch Organization of Little People.Billy Barty Foundation This organization through education and lobbying seeks to help little people move into the mainstream.Camp Little PeopleAlfred I. duPont Hospital for Children's Genetic ProgramDwarf Athletic Association of America They Promote and provides quality amateur-level athletic opportunities for dwarf athletes.Greenberg Center for Skeletal Dysplasias Dedicated to the medical care and education of persons with skeletal dysplasias, and to the clinical and laboratory investigation into these conditions.Human Growth Foundation Supports basic clinical research pertaining to growth disorders. Disseminates information. Encourages development of local parent support groups. Oversees a grant program to support research.LPA Adoption CommitteeLPA Parents Forum A good Newsletter for parents of dwarf children. (Little People of ManitobaLittle People of New ZealandLittle People of OntarioLittle People's Research Fund, Inc. Assists little people in getting best medical care also supports research in causes and treatment of dwarfism.MAGIC Foundation Major Aspects of Growth in Children Foundation for Children's Growth and Related Adult Disorders emphasizes short-stature conditions that lend themselves to treatment, such as human-growth hormone.National Mucopolysaccharidoses (MPS) Society Dedicated to serving parents through networking, physician referrals and professional publication education.Osteogenesis Imperfecta Foundation A Voluntary national health organization dedicated to alleviating problems with osteogenesis imperfecta. PRhizomelic Chondrodysplasia Punctata (RCP) Support GroupShort Statured People of Australia (SSPA)Teddy Bear Foundation for Achondroplasia Offers Financial help for the families of children who have experienced severe medical problems from unusually acute cases of achondroplasia.Turner's Syndrome Society of the United StatesTurner Syndrome Society of CanadaDwarfism.org Intended as a worldwide source of information on dwarfism and on organizations involved with dwarfism.Danny Black Dwarfism-related information. Casey's Little Spot in Cyberspace Diastrophic Dysplasia Help and resources for one of the most common forms of dwarfism. Morquio's Parent Support GroupFor families affected by Morquio's syndrome. Ellis-van Creveld SyndromeA site started by the mother of a child with EvC. Kniest Support Group Russell-Silver Syndrome Web Site Multiple Epiphyseal Dysplasia Support GroupThis condition is also known as Fairbank's disease. International Clearinghouse for Birth Defects Monitoring SystemsDedicated to the sharing of data, news, and views on congenital malformations, monitoring, research, and prevention. Online Mendelian Inheritance in Man (OMIM) A wealth of information on dwarfism and other genetic conditions. Alliance of Genetic Support Groups On a Roll RadioTalk radio on life and disability, hosted by Greg Smith. "On a Roll Radio" is broadcast on Sundays at 9:05 p.m. EST. If your computer is outfitted with RealPlayer, you can listen to it on the Web. 4 foot 10: Little People, Big LivesA 27-minute film about three dwarfs attending their first LPA convention. Filmmaker Peter Mauro will soon be offering this video for sale; currently, video highlights can be downloaded. ShortA 10-minute film written and directed by Imogen Murphy, an Irish filmmaker. Allegedly available for viewing, although I had no luck. Dr. Judy Badner Short-statured geneticist and psychologist Danette Baker A woman with Morquio's syndrome, a rare dwarfism type Gabrielle Bartholomew "SunFyre's Realm" Laurie BenZ Aaron Board Professional artist's painting of a male dwarf David Bradford Yes, they're ... William Bradford ... brothers Tanyalee Davis A comedian Chris Errera Keyboardist in Sine the Band; site includes MP3 files Ricardo Gil A professional photographer; themes include dwarfism Joe Goin Joe's Place Jennifer's Page A young girl with achondroplasia Joanna's Page A young girl with SED, from Maui Dan Kennedy LPA Online's webmaster Kim's Page A 17-year-old from San Jose, California Brian Kline "Dwarfstar," actor and webmaster Craig, Susan, and Sean Miller Sean's the cute one Patrick M. Moxley CEO/president of Community Development Housing Foundation Robyn Formerly Jewel; "Robyn's Silly Place" Joelle Sawisch Joelle's page Richard N. Scalan "Nick's Makeshift Homepage" Carone Sturm Mother of a son with osteogenesis imperfecta Tanya A California State University student with achondroplasia Jill Taylor "Jillaroo" Don, Donna, and Duncan Wells Opens with a great picture Dr. William A. Wheaton Astrophysicist at CalTech Dwarfism List Participate in an online discussion with more than 600 others via e-mail.Internet Relay Chat (IRC) Chat in real time with other members of the dwarfism community.Dwarfism Products Information on a variety of products to help short-statured people maneuver around an environment built for the advantage of average-size people. |